WHAT IS YOUR SHOCK AND AWE?

August is SMA awareness month. 

Do you know that it is very hard to unknow something that you have learned? 
So please take a few minutes to get to know something about SMA. 
Do you pay attention to viral internet causes? Do you know about the Ice Bucket yet?
This has been a great public awareness campaign and fund raiser for ALS. 

This is a great example of guerilla marketing. But there is more, here is the rest of the story. Thanks ALS for awaking the sleeping giant from your kissing cousin SMA!

• DID YOU KNOW that the purpose of the ice is to show you how the body is shocked when ALS takes over.
• DID YOU KNOW that SMA is the little people version of ALS? 
• DID YOU KNOW THAT SMA affects 1 in 6000 kids everyday.
• DID YOU KNOW that our Lil Darling has SMA? She "inherited" this dreaded disease from her parents who didn't know they were carriers, they walked out of her life and now we are honored to have her in our forever family.
• DID YOU KNOW that most families struggle hourly with the medical challenges of raising a child with a dreaded neuromuscular disease that is slowly killing them. Some sooner than later.
• DID YOU KNOW that SMA is very similar to ALS? Check out this chart attached 
• DID YOU KNOW that all the little kids battling SMA don't understand the genetics of how they have been given this dreaded disease? 
• DID YOU KNOW that some of our kids think that feeding tubes are normal, along with ventilators, braces and wheelchairs?
• DID YOU KNOW that there are hundreds of thousand of carriers that could be tested to see if they have SMA. For information visit www.gettyowl.org
• DID YOU KNOW that science is very close to finding out how modern technology can help our SMA kids live life better or even help prevent this dreaded disease? 
• CAN YOU IMAGINE our little girl getting to WALK - that is all she wants 2 steps she says.
• CAN YOU IMAGINE SMA kids with no wheelchairs, no ventilators, no therapies and talking?. There is an organization that is helping raise funds for our kids to be "normal" from talking to using their fine motor skills. This organization runs so someday our kids will run. Check out www.thegsf.org

SO WHAT CAN YOU DO? 

• EVERY MINUTE is valuable so please take a minute to learn and tell others about SMA. Check out www.curesma.org
• EVERY MINUTE there is a new condition discovered with modern technology. There are plenty of conditions and orphan diseases that need publicity - choose your favorite and make people aware!

EVERY MINUTE SMA will SHOCK a new family. 

Now that you know the rest of the story what will you do?

WHAT WAS YOUR SHOCK? AND WHAT WILL YOUR AWE BE?

You may not have any SHOCK now, so please find time to show your AWE and help a family.